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title: "Parkinson's Australia May News: PANC27 announcement, advocacy highlights and more..."
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Join us from 16 to 18 May 2027 for the Parkinson's Australia National Conference in Sydney! ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­    ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏  ͏ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­ ­  

| Parkinson's Australia is bringing "The Parkinson's Coach," Gaia Forlani to PANC27 View in browser Hi there,     We are one year away from the Parkinson's Australia National Conference 2027! It will be held from May 16 to 18 at the Sydney ICC.   International keynote speaker announcement: Gaia Forlani is a neuroscientist specialising in sensorimotor, clinical, and movement neuroscience (pictured above). Hear her on the Parkinson's eXchange Podcast with CEO Olivia Nassaris & Parkinson's Australia Ambassador and co-host Damien Leith on your favourite streaming platform, or watch her on YouTube here.   What to expect from #PANC27: Day 1: Focused sessions only for healthcare professionals, discussing medical advancements, best practices and providing a networking opportunity. NOTE: Day 1 (Sunday) is for Health Professionals only to meet regulatory compliance requirements under the Therapeutic Goods Regulations and the Therapeutic Goods Act.   Day 2/3: These sessions (Monday & Tuesday) are open to all delegates. These days are designed to provide the Parkinson’s community with research updates from Australia and around the world, evidence-based practices on how to live well with Parkinson’s, and to provide the community with the opportunity to socialise, exchange thoughts, and the space and time to connect. Book your conference tickets now Advocacy highlight... Support at Home: Needs not a number We want to hear from you about the switch from My Aged Care to Support at Home. Has it left you worse off, or do you have any feedback on the assessment process now?     Right support at the right time We need to hear from you. People living with Parkinson’s and Atypical Parkinsonism know firsthand where the system falls short. Your experiences can help the Senate understand: how assessments often overlook the complexity of chronic neurological conditions the challenges of managing symptoms without consistent, specialised support the impact of rigid funding models that do not account for fluctuating needs the strain placed on carers when services are delayed or inadequate the importance of early, ongoing, and tailored support to remain safely at home. Every submission, whether a short personal story or a detailed account, adds weight to the call for a fairer, more responsive Support at Home system.   How you can contribute You can make a written submission to the Senate Inquiry outlining your lived experience, concerns, or recommendations. Submissions do not need to be formal. A simple explanation of how the current system affects your daily life is valuable and powerful. USE OUR TEMPLATE (doc).    Parkinson’s Australia will also prepare a national submission, drawing on research, community feedback, and the voices of people living with Parkinson’s and Atypical Parkinsonism. If you prefer, you can share your story with us anonymously for inclusion in our submission. Your voice can help shape a Support at Home system that recognises chronic neurological conditions and provides the right support at the right time.   Together, we can advocate for a future where every Australian living with a chronic neurological condition receives care that reflects their needs, not just their age. Yours in advocacy & change, Olivia & the Parkinson's Australia Team  Non-invasive incontinence solutions for men & women Click to discover more about BD Purewick Clinical Trials Day is May 20! Serina Therapeutics launched a clinical trial for PwP aged 40 to 80 who have daily OFF episodes not optimally controlled with their current medications. Participants will stay at a Phase 1 unit for 7 days and return for a follow-up visit on Day 14.   www.parkinsons.org.au/news/serina/  The goal of this study is to assess whether this new testing can detect decline in cognitive function in Progressive Supranuclear Palsy (PSP) better than existing pen and paper tests.   https://www.parkinsons.org.au/clinical-trial/assessing-cognitive-trajectories-in-psp/  UNSW Lifestyle Clinic is asking for anyone 18+ that is healthy or dX Idiopathic PD (with no known upper limb impairment/ injury that can impede upper limb performance), to help with their latest study.   https://www.parkinsons.org.au/clinical-trial/unsw\_upper\_limb\_study/  A project that seeks to explore consumers’ perspectives on the current use of AI in healthcare practice, their AI education and training needs, and their level of comfort with the development and implementation of AI in healthcare.   https://www.parkinsons.org.au/clinical-trial/uni-newcastle-ai/ Help us spread the word! Share your newsletter with friends, family & colleagues. Follow us on social media. @parkinsonsaus & @yopxaustralia Parkinson's Australia Limited, 15 Moore Street, Level 4, Canberra, ACT 2601, Australia, 0407703328 Unsubscribe Manage preferences |
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